I am passionate about traveling and I hope to be able to travel more in the future. I try to make the best out of hard situations. It is not always easy to do, but I realize that without all...
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What motivates me to work on FA: The FA community motivates me every single day. I was lucky enough to be invited to Camp Sunshine in June 2012 as a brand new postdoc in Dr. Susa Wells’ lab. I had...
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The FA Diagnosis I received the actual FA diagnosis in 2020, after years of wondering what was causing my low blood counts. By the time I was finally diagnosed, my health was on a downward trend. Thankfully, my diagnosis allowed...
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It is not easy, but we do our best to live day by day. We have learned that we can laugh in the midst of pain. We work hard to seek answers for ourselves and others who are affected by FA in...
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Dr. Minguillon with his brother and mother
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