The FA Diagnosis I received the actual FA diagnosis in 2020, after years of wondering what was causing my low blood counts. By the time I was finally diagnosed, my health was on a downward trend. Thankfully, my diagnosis allowed...
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It is not easy, but we do our best to live day by day. We have learned that we can laugh in the midst of pain. We work hard to seek answers for ourselves and others who are affected by FA in...
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Dr. Minguillon with his brother and mother
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October 18, 2018, the sweet wait came to an end. During pregnancy, emotions are always on the surface. You imagine what it will be like to have the baby in your arms and even what kind of education you want...
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Joanne Smith at a FARF Adult Meeting Joanne and Kevin at a fundraiser for Fanconi Hope in the United Kingdom You’ll Never Walk Alone When you walk through a storm Hold your head up high And don’t be afraid of...
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Originally published February 28, 2021 on The Negative Space My husband is one of the 30 million Americans living with a rare disease. Fanconi anemia (FA) has no color recognizable by the general public. You can’t buy cereal or water bottles...
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