The Johnson Family: Rebecca, Craig, sons Brett and Michael The beginning of Michael and Brett’s Fanconi anemia journey Our journey with Fanconi anemia (FA) began February 7, 2016 – a night we remember vividly. It was the first time –...
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Violet (far right), with her siblings Emma, Fisher, and Tyson Hello, FAmily! My name is Paige, and my three-year-old daughter Violet was diagnosed with Fanconi anemia (FA) in 2020. Violet has three older siblings: two brothers and a sister who...
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Noticing the changes During those final two years of hosting the 5K for FA when Eli was 13-14 years old, our family had also suffered several losses, one after another, and we could not catch our collective breath. Eli suffered...
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Hi, my name is Michelle and I’m from a small town outside of Pittsburgh, Penn. Like a lot of teenagers, I had big dreams and goals for what I was going to do with my life. I knew early on...
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What motivates me to work on FA: Patients with FA are my motivation. Knowing the importance of efficient DNA repair mechanisms makes you realize that we continuously live rescuing each one of our cells from potentially fatal injuries suffered by...
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Dr. Alter at Camp Sunshine during Fanconi Anemia Week If you’ve ever been to a Fanconi anemia (FA) Scientific Symposium or Family Meeting, chances are you attended an FA 101 presentation given by Dr. Blanche Alter. There’s a reason that...
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