Noticing the changes During those final two years of hosting the 5K for FA when Eli was 13-14 years old, our family had also suffered several losses, one after another, and we could not catch our collective breath. Eli suffered...
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Hi, my name is Michelle and I’m from a small town outside of Pittsburgh, Penn. Like a lot of teenagers, I had big dreams and goals for what I was going to do with my life. I knew early on...
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What motivates me to work on FA: Patients with FA are my motivation. Knowing the importance of efficient DNA repair mechanisms makes you realize that we continuously live rescuing each one of our cells from potentially fatal injuries suffered by...
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Dr. Alter at Camp Sunshine during Fanconi Anemia Week If you’ve ever been to a Fanconi anemia (FA) Scientific Symposium or Family Meeting, chances are you attended an FA 101 presentation given by Dr. Blanche Alter. There’s a reason that...
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We began a fundraising campaign to raise $100,000 (USD) which was required for the transplant in India ($45,000 for the transplant, $35,000 for the donor and $20,000 for airfares and living expenses in India for the entire family for six...
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I am passionate about traveling and I hope to be able to travel more in the future. I try to make the best out of hard situations. It is not always easy to do, but I realize that without all...
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