Stephanie, Brandon, and Raymond The early years Hi, my name is Stephanie and my 13-year-old son, Brandon, was diagnosed with Fanconi anemia (FA) at age four. After learning more about the signs and symptoms of FA, we knew Brandon had...
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Stephanie, Brandon, and Raymond The early years Hi, my name is Stephanie and my 13-year-old son, Brandon, was diagnosed with Fanconi anemia (FA) at age four. After learning more about the signs and symptoms of FA, we knew Brandon had...
Stories
The stats: Name: Wayne Crismani Institution: St Vincent’s Institute of Medical Research, Victoria, Australia Area of expertise: DNA repair and recombination My work: I am a laboratory scientist and work mostly in discovery research. I run the DNA Repair and...
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FARF continues to grow the support we provide caregivers, including in how to return to in-person events. During the recent Retreat for Adults with FA, one of the ways we sought to help caregivers feel seen and important was through partnering...
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Congratulations to Henry Ryan Fenyo, recipient of the 2022 Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia. Henry is a recent high school graduate and is planning to attend St. John’s University in Queens, New York....
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Individuals with Fanconi anemia (FA) have a significantly increased risk of developing anogenital squamous cell cancers, including vulvar, cervical, vaginal, and anal cancers. Treating anogenital cancers in individuals with FA can be challenging because they have extreme sensitivity to radiation...
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Lynn Frohnmayer (center) surrounded by FARF leadership In the Fanconi anemia (FA) community, the name “Frohnmayer” carries a legacy like no other. Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF) in 1989 as a means to legally...
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