News

From Dream to Reality: Empowering Parenthood Through Egg Donation and Surrogacy

To begin this story, I want to share that my dream of being a mother came true because three of the most powerful types of love I know came together: the love of a couple, the love of a sister,...

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My (Continued) Journey with Fanconi Anemia Families

"FA Skyline" art project from Camp Sunshine FA Week How it all started One day, while I was working at Mount Sinai, Dr. Jeffrey Lipton asked me to do him a favor. He asked me to run a support group...

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Naomi the Warrior

Naomi with her brother and cell donor It’s just a stomach virus… June 2021 was a turning point for our family that we never saw coming. Naomi had just turned seven years old. She was struggling with stomach issues for...

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Living Life to the Fullest as an Adult with FA

Living with FA as an adult One way I describe my life living with FA is this: it’s like being picked last for a sport or a group project. It’s that feeling of dread and anxiety and hurt. It’s annoyance...

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Scientist Spotlight: Sharon Savage

Name:  Sharon A. Savage, MD Institution: Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA. Area of expertise: Pediatric hematology-oncology, genetics, cancer predisposition syndromes, inherited bone marrow failure syndromes My work: ...

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Brandon’s FA Journey

Stephanie, Brandon, and Raymond The early years Hi, my name is Stephanie and my 13-year-old son, Brandon, was diagnosed with Fanconi anemia (FA) at age four. After learning more about the signs and symptoms of FA, we knew Brandon had...

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