Living with FA as an adult One way I describe my life living with FA is this: it’s like being picked last for a sport or a group project. It’s that feeling of dread and anxiety and hurt. It’s annoyance...
Stories
News
Name: Sharon A. Savage, MD Institution: Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, National Institutes of Health, Bethesda, MD, USA. Area of expertise: Pediatric hematology-oncology, genetics, cancer predisposition syndromes, inherited bone marrow failure syndromes My work: ...
Stories
Stephanie, Brandon, and Raymond The early years Hi, my name is Stephanie and my 13-year-old son, Brandon, was diagnosed with Fanconi anemia (FA) at age four. After learning more about the signs and symptoms of FA, we knew Brandon had...
Stories
The stats: Name: Wayne Crismani Institution: St Vincent’s Institute of Medical Research, Victoria, Australia Area of expertise: DNA repair and recombination My work: I am a laboratory scientist and work mostly in discovery research. I run the DNA Repair and...
Stories
FARF continues to grow the support we provide caregivers, including in how to return to in-person events. During the recent Retreat for Adults with FA, one of the ways we sought to help caregivers feel seen and important was through partnering...
Stories
Congratulations to Henry Ryan Fenyo, recipient of the 2022 Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia. Henry is a recent high school graduate and is planning to attend St. John’s University in Queens, New York....
Stories