Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.
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Hope We learned more about FA from nationally renowned doctors and researchers. They didn't sugar-coat their findings about this disease, but they did offer a consistent message of hope. More than a decade ago, the life expectancy for someone with...
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The Aitkins family: Bryan, Jen, London, and Sydney It was a regular Wednesday in early 2019, with all of us heading out the door for school and work. However, our daughter London was suffering from a stomachache. She had been...
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Dr. Garcia-Escudero (center), and his research team The stats: Name: Ramon Garcia-Escudero, PhD Institution: Molecular and Translational Oncology Division at CIEMAT, Centro de Investigacion Biomedica en Red de Cancer, and Research Institute Hospital 12 de Octubre, Madrid, Spain Area of expertise: Disease...
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The Athens family: Vicki (L), Andrew, Andy, Christian Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). The pregnancy was normal until the sixth month, when the ultrasound showed...
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Presenting at the 2019 FARF Scientific Symposium in Chicago What motivates me to work on FA: My biggest motivators are people with FA and their families. Witnessing the strength, positivity, and courage of the FA community at my first FARF...
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