The Aitkins family: Bryan, Jen, London, and Sydney It was a regular Wednesday in early 2019, with all of us heading out the door for school and work. However, our daughter London was suffering from a stomachache. She had been...
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Dr. Garcia-Escudero (center), and his research team The stats: Name: Ramon Garcia-Escudero, PhD Institution: Molecular and Translational Oncology Division at CIEMAT, Centro de Investigacion Biomedica en Red de Cancer, and Research Institute Hospital 12 de Octubre, Madrid, Spain Area of expertise: Disease...
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The Athens family: Vicki (L), Andrew, Andy, Christian Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). The pregnancy was normal until the sixth month, when the ultrasound showed...
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Presenting at the 2019 FARF Scientific Symposium in Chicago What motivates me to work on FA: My biggest motivators are people with FA and their families. Witnessing the strength, positivity, and courage of the FA community at my first FARF...
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Caregiver coaching is essential to my wellbeing. Having a child with Fanconi anemia can be isolating, even with a large and steadfast support system and a loving partner. As much as our family, friends, neighbors, and coworkers try to understand,...
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To begin this story, I want to share that my dream of being a mother came true because three of the most powerful types of love I know came together: the love of a couple, the love of a sister,...
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