The Athens family: Vicki (L), Andrew, Andy, Christian Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). The pregnancy was normal until the sixth month, when the ultrasound showed...
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Presenting at the 2019 FARF Scientific Symposium in Chicago What motivates me to work on FA: My biggest motivators are people with FA and their families. Witnessing the strength, positivity, and courage of the FA community at my first FARF...
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Caregiver coaching is essential to my wellbeing. Having a child with Fanconi anemia can be isolating, even with a large and steadfast support system and a loving partner. As much as our family, friends, neighbors, and coworkers try to understand,...
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To begin this story, I want to share that my dream of being a mother came true because three of the most powerful types of love I know came together: the love of a couple, the love of a sister,...
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"FA Skyline" art project from Camp Sunshine FA Week How it all started One day, while I was working at Mount Sinai, Dr. Jeffrey Lipton asked me to do him a favor. He asked me to run a support group...
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Naomi with her brother and cell donor It’s just a stomach virus… June 2021 was a turning point for our family that we never saw coming. Naomi had just turned seven years old. She was struggling with stomach issues for...
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