In a world where every day presents new challenges, my 11-year-old son, Omar, from Oman, stands out for his resilience and eagerness to raise awareness about Fanconi anemia. Diagnosed at just five years old, we truly believe his journey is a testament to hope and the strength of the human spirit.
Stories
My name is Blue Mohr and I’m a 27-year-old living with Fanconi anemia (FA). I’m from Austin, Texas, though I am currently living in Washington, D.C. where I’m pursuing a Master of Public Health degree from the George Washington University with concentrations in epidemiology, cancer, and public health communication and marketing.
Stories
When our son Blake was diagnosed with Fanconi anemia in 2013, our world instantly changed. He was two years old and we didn’t have many medical concerns. Never in a million years would we have predicted all that Blake and our family would go through.
Stories
There’s nothing quite like the fierce determination of parents who have a child affected by Fanconi anemia. Our founders had three daughters with FA and to this day, the majority of our funding comes from FA family communities. One such family community from Colorado has been working on this cause for nearly 20 years and has raised an outstanding $3.1 million for FA research.
Stories, Fundraising
In the Genome Stability Laboratory, we use cutting edge techniques to study the DNA damage response and inform the development of novel therapeutics. I am also a member of the PRECISE Laboratory (Proton research at The Christie and the University’s Division...
Stories
Something felt ‘off’ We couldn’t pretend we didn’t have concerns about Walker’s health early on. He endured stomach issues almost daily. Consults with gastro specialists got us nowhere, hearing that it was a minor and common issue. But holding him...
Stories
