Something felt ‘off’ We couldn’t pretend we didn’t have concerns about Walker’s health early on. He endured stomach issues almost daily. Consults with gastro specialists got us nowhere, hearing that it was a minor and common issue. But holding him...
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The Corn Lab Name: Jacob Corn Institution: Institute of Molecular Health Sciences, ETH Zurich, Zurich, Switzerland Area of expertise: Genome editing, DNA repair mechanisms, genome-wide CRISPR screening, protein/organelle quality control My work: I am the Professor of Genome Biology at ETH...
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The Endure for a Cure RAGBRAI team This summer, a remarkable team of individuals united as “Endure for a Cure” in support of the Fanconi anemia (FA) community to achieve something truly extraordinary: bike over 500 miles while raising an...
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Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.
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Hope We learned more about FA from nationally renowned doctors and researchers. They didn't sugar-coat their findings about this disease, but they did offer a consistent message of hope. More than a decade ago, the life expectancy for someone with...
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The Aitkins family: Bryan, Jen, London, and Sydney It was a regular Wednesday in early 2019, with all of us heading out the door for school and work. However, our daughter London was suffering from a stomachache. She had been...
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