Our Mighty Mouse Well before her diagnosis of Fanconi anemia (FA), our daughter Norah was a model in resiliency for us. Born at just five pounds and three ounces, she had the strongest heartbeat on the hospital floor, surprising us...
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Do you make resolutions for the New Year? I used to, but they wouldn’t last very long, so I found myself making new, monthly resolutions. This technique is a variation of a technique I learned in my twenties. My employer...
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We first learned something was wrong in 2004. I was a normal, healthy kid until I went to my pediatrician for my 13-year-old booster shot and blood draw. That was the first sign something was off. After a bone marrow...
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Introducción Mi especialidad empezó en 1927 como huérfana. Sin tener ninguna relación con nada conocido hasta entonces y sin conexiones a una comunidad mas amplia, lo que siguieron son 60 anos de abandono. En 1985, una valiente familia decidió que...
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In 1983, Oregon parents Lynn and David Frohnmayer learned their two daughters, Kirsten and Katie, had Fanconi anemia (FA), a rare genetic disorder that leads to bone marrow failure, leukemia, and cancer. They would later find out that their third...
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My name is Mary-Beth Johnson. I’m 26 and I have Fanconi anemia. I climb mountains, make avocado roses, and I spend a lot of money at Target when I’m stressed. I don’t generally identify as someone who is sick, because...
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