This article was originally published in the FA Family Newsletter (Spring 2015). If you were to dance your life, what would it look like? A close friend posed this question recently and despite a host of hip hop and ballet...
Stories
News
Going out in public has always been a way for me to feel connected to the whole. Even if I wasn’t talking to anyone, just being surrounded by other energies and close proximity brought me both joy and the feeling...
Stories
One group of people we often think about but don’t often directly address is caregivers. All of you partners, parents, siblings, grandparents, friends or family members, we want you to know how vital you are to this community. We want...
Stories
I can’t tell you how much I have loved climbing for Fanconi anemia fighters. The main focus of “Your Rope Team” has always been to find a cure and give those with FA more hope. I would love for all...
Stories
For those patients (and parents!) in peds or reaching a transition, here’s a little encouragement: Transitioning to adult care with a rare disease like FA is a GIFT. Not everyone with our diagnosis gets to adulthood; enjoy this rite of...
Stories