One group of people we often think about but don’t often directly address is caregivers. All of you partners, parents, siblings, grandparents, friends or family members, we want you to know how vital you are to this community. We want...
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I can’t tell you how much I have loved climbing for Fanconi anemia fighters. The main focus of “Your Rope Team” has always been to find a cure and give those with FA more hope. I would love for all...
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For those patients (and parents!) in peds or reaching a transition, here’s a little encouragement: Transitioning to adult care with a rare disease like FA is a GIFT. Not everyone with our diagnosis gets to adulthood; enjoy this rite of...
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I thought of my first FA friend, the many encounters I have shared with the FARF staff, board members, families, and all the friends I have made since rejoining the community a few years ago. I thought back on this...
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One of FARF’s guiding principles is to gather researchers and clinicians in the FA community every year to share updates in research and care. In September 2019, we held the 31st Fanconi Anemia Scientific Symposium in Chicago, Ill. Forty-four presenters...
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My wife, Jolandie, and I had a pretty good thing going back in our hometown of Mbombela, South Africa. By age 25, I had successfully owned and operated two reputable businesses, had a lovely home, and plenty of people we...
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