Read Sharon’s popular piece on the history of Fanconi anemia: No Longer an Orphan - the FA Story
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Caregivers,I see you watching your person even more closely than before, noting the way he breathes, questioning if it seems more shallow than normal.I see you reading between the lines of every article, trying to discern just how bad this...
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We asked Kathy to tell us a little about what motivates her to support FARF: “My niece and goddaughter, Emily Mitchell, is an FA child. I’d like to tell you a little about her. She was born prematurely in 2008...
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Piper was the first friend Bella’s age that she lost to the same disease she has. It hit us all hard when the FA community lost Piper, but it absolutely devastated a then 11-year-old Bella. To this day she cannot...
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Thirty years ago, I was told that I had an incurable terminal illness called Fanconi anemia (FA). My father was alone when he received the diagnosis and was told not to tell the nurses, as the news would be too...
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This article was originally published in the FA Family Newsletter (Spring 2015). If you were to dance your life, what would it look like? A close friend posed this question recently and despite a host of hip hop and ballet...
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