News

How to Be Present for Your Friends This Holiday Season

A number of articles have been circulating lately on this very topic at this time of year. A piece I wrote entitled, “Friend, I See You This Thanksgiving” was shared and read exponentially more than anything else I’ve written. This tells me...

Read More >

Toxic Positivity: It’s okay not to be okay

What is toxic positivity? Toxic positivity is the excess and ineffective overgeneralization of a happy, optimistic state across all situations. This results in denial, minimization, and invalidation of the authentic human emotional experience. We see manifestations of toxic positivity around...

Read More >

Fundraising Wins: 2019-2020

2019 was a record-breaking year for fundraising at FARF. We saw a 32% overall increase in fundraising dollars, which was made possible, in huge part, to the number of families fundraising increasing by 10%. We are so proud of this...

Read More >

We Will Do Better

To the FA community, Currently, we are confronted with the challenges of two public health crises: the ongoing COVID-19 pandemic and the enduring system of racial injustice in the United States.The Fanconi Anemia Research Fund supports the Black community and...

Read More >

Can brush biopsies identify pre-malignant or malignant oral lesions? Study results show yes

Oral cancer begins as a precancerous lesion. If a lesion does not heal in four weeks, FA individuals are advised to consult with an otolaryngologist (ENT physician). If the lesion appears suspicious, the physician often performs a biopsy. Could precancerous...

Read More >

2020 Meeting Changes

To the Fanconi anemia community, I am writing to inform you that, due to the global health crisis, the Fanconi Anemia Research Fund (FARF) has made the very difficult decision to not move forward with the in-person 2020 Scientific Symposium and Meeting for...

Read More >