While the FA Research Fund is based in the United States, FA research, families, and support organizations span the entire globe. To strengthen the efforts of our partners in the international FA community, FARF established the International FA Support Grant...
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Last updated May 14, 2021. This page will be updated as more information becomes available. This statement was written with the input of the National Organization for Rare Diseases and clinicians specialized in treating Fanconi anemia patients. In December 2020, two COVID-19 vaccines...
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People with Fanconi anemia (FA) are at a very high risk of developing head and neck cancers because of the underlying DNA repair problem in FA. Research is the key to understanding, diagnosing, and treating these cancers. That’s why the...
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This report is an overview of research shared at the 2020 Fanconi Anemia Research Fund Scientific Symposium covering three main topics: solid tumors, fertility, and bone marrow failure. Solid tumors What is the issue and how does it affect people...
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A number of articles have been circulating lately on this very topic at this time of year. A piece I wrote entitled, “Friend, I See You This Thanksgiving” was shared and read exponentially more than anything else I’ve written. This tells me...
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What is toxic positivity? Toxic positivity is the excess and ineffective overgeneralization of a happy, optimistic state across all situations. This results in denial, minimization, and invalidation of the authentic human emotional experience. We see manifestations of toxic positivity around...
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