News

Global Fanconi Anemia Gene Therapy Program Update

The global Fanconi anemia gene therapy program will continue to be available for patients in the USA and Europe during 2018 and 2019. In Europe, a new study, known as FANCOLEN-2, will be available at CIEMAT/Hospital del Niño Jesús in Madrid,...

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New FA Research Funded

We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA. Read about each project: Investigator: Agata Smogorzewska, MD, PhDInstitution:The Rockefeller University, New York City, New YorkTitle:...

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HNSCC in FA Meeting

Identify potential prevention strategies for FA HNSCC. Clearly define potential diagnostic tests that would help inform the best treatment options that have minimal side effects and can be specifically tailored to patients. Outline conventional treatment strategies for non-FA HNSCC that...

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Two Clinical Trials Funded

Metformin (N,N-dimethylbiguianide) has been shown to be a safe oral medication widely used for many decades to treat high blood sugar. Recently, there has been renewed interest in metformin given its anti-oxidant properties, aldehyde scavenging capability, and potential cancer-protective effects....

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#ThisIsHowIFA: Fanconi Anemia Day

This year’s slogan is #ThisIsHowIFA. Inspired by Matt Pearl, an adult with FA, #ThisIsHowIFA reflects the many people it takes to make a difference and find a cure. Matt says “FA means Find Answers. FA means Fight Always.” People with...

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