When FARF created guiding principles back in 1989, one was that each year, we would bring together researchers working on FA and physicians treating people with FA. They would spend three days sharing updates and concerns, brainstorming ideas and creating collaborations. In...
Announcements
My name is Mary-Beth Johnson. I’m 26 and I have Fanconi anemia. I climb mountains, make avocado roses, and I spend a lot of money at Target when I’m stressed. I don’t generally identify as someone who is sick, because...
Stories
Where were you the day your life changed forever? Do you remember how you felt the moment you knew nothing would ever be the same again? Sean, Maya, and Allison Breininger Sean was in his early 30s, married to his...
Stories
Sibling relationships can be the longest, strongest and at times the most complex relationships in a family. During the formative years, siblings share life’s journey and all it brings. What is it like to be the sibling of someone with...
Stories
The holidays are a time to show gratitude and to give back. If you’re looking for a way to do both, consider joining the holiday campaign for FA research. Not only will you be helping those you know and love...
Announcements
https://www.youtube.com/watch?v=SFniw98z-n4 Dr. Agata Smogorzewska talks about her FA research project What motivates me to work on Fanconi anemia: I became interested in Fanconi anemia due to the critical function of FA proteins in DNA repair. Quite accidentally, I discovered a...
Announcements
