What are aldehydes and what do they do? Research has shown that small molecules called aldehydes cause DNA damage and increase the potential for bone marrow failure. Aldehydes are formed within our bodies (endogenous) and from sources outside our bodies...
Announcements
We asked the FA community to help design FARF’s 30th anniversary t-shirt. You all responded with some fantastic entries. We have narrowed down the submissions to six finalists, and now the voting turns to YOU. Please look at each of...
Announcements
FA families started FA Day 10 years ago to raise funds for research & family support services. We know that longer and better lives for people with FA are possible when we all get involved. #ThisIsHowIFA reflects the many people it...
Announcements
We first learned something was wrong in 2004. I was a normal, healthy kid until I went to my pediatrician for my 13-year-old booster shot and blood draw. That was the first sign something was off. After a bone marrow...
Stories
To fast-track therapies for people with Fanconi anemia (FA), it’s often best to start by examining progress that’s already been made in the general population. Large-scale studies such as The Cancer Genome Atlas (TCGA) have made it possible to detect...
Announcements
Introducción Mi especialidad empezó en 1927 como huérfana. Sin tener ninguna relación con nada conocido hasta entonces y sin conexiones a una comunidad mas amplia, lo que siguieron son 60 anos de abandono. En 1985, una valiente familia decidió que...
Stories
