One group of people we often think about but don’t often directly address is caregivers. All of you partners, parents, siblings, grandparents, friends or family members, we want you to know how vital you are to this community. We want...
Stories
News
MARCH 13: Due to the ever-evolving impact of the coronavirus pandemic, FARF staff will be working remotely for the next few weeks. While we are equipped with the necessary technology to continue meeting our mission and providing service, this will...
Announcements
I can’t tell you how much I have loved climbing for Fanconi anemia fighters. The main focus of “Your Rope Team” has always been to find a cure and give those with FA more hope. I would love for all...
Stories
For those patients (and parents!) in peds or reaching a transition, here’s a little encouragement: Transitioning to adult care with a rare disease like FA is a GIFT. Not everyone with our diagnosis gets to adulthood; enjoy this rite of...
Stories
I thought of my first FA friend, the many encounters I have shared with the FARF staff, board members, families, and all the friends I have made since rejoining the community a few years ago. I thought back on this...
Stories
Read about Dr. D'Andrea's FARF-funded research projects At the 2019 FARF Scientific Symposium, Dr. D’Andrea was presented with the Lifetime Achievement Award for dedicating his career to the advancement of Fanconi anemia research. Dr. D’Andrea has been a pillar of...
Announcements