The Family Retreat offers families a break from appointments, treatment decisions and everyday responsibilities. Children can try new activities and grow in confidence while caregivers learn, share practical support and connect with one another. The relationships formed at camp often continue long after everyone goes home.
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Kelsey McQueen
Kelsey McQueen is a genetic counselor working for a patient advocacy organization in Virginia. Her younger brother was diagnosed with Fanconi anemia shortly after birth and has more recently developed complications related to Fanconi anemia neurological syndrome (FANS). Since his diagnosis, her family has been deeply engaged with FCF, contributing to fundraising and community outreach efforts. Kelsey is particularly passionate about advancing awareness and research focused on FANS to support the development of improved treatment approaches.
Kelsey McQueen
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By Cecilia Córdoba, mother of Agustina Milagros Kaucic When my daughter Agustina was 2 and a half years old, our lives changed forever. It was very difficult to reach a diagnosis. And when we finally received it, it was devastating....
The children and adults with FA are why we’re all here. They are the reason for the countless hours spent in the lab, the energy poured into fundraisers, the conversations we have with anyone willing to listen, and the reason...