FCF has committed $631,164 to three projects addressing critical gaps in FA cancer research. The work spans different stages, from exploring oral gene therapy and screening drugs for FA-specific safety to analyzing clinical experiences that could inform future care. These projects are building the knowledge needed to pursue safer cancer options for people with FA.
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María Guadalupe
María Guadalupe is a Mexican mother of two teenagers—Layla Quetzali and Itza Alejandra, the latter of whom lives with FA. María works as a preschool director in Mexico City. An empathetic woman who enjoys writing about feelings arising from everyday life, she is committed to supporting children—including those with Fanconi anemia—and their families in managing emotions, helping them recognize and cope with their feelings throughout the course of the illness.
María Guadalupe
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Living with Fanconi anemia, or caring for someone with FA, brings ongoing uncertainty, complex medical experiences and emotional strain. These experiences affect more than physical health. They can also shape mental health, relationships, daily routines and a person’s sense of safety and connection. The Fanconi Cancer Foundation is pleased to introduce the Mental Health and Wellbeing Toolkit, a new resource offering practical tools and trusted guidance for people living with FA and those who care for them.
Our son Blake is 14 years old and eight years post bone marrow transplant. While we celebrate milestones, it’s important to remember that the transplant did not cure his Fanconi anemia. It gave him something incredibly valuable, more time, but FA is still part of his life.