Events

Annual Family Retreat

Jun 21st, 2025, 04:30 PM - Jun 25th, 2025, 11:00 AM

We are delighted to invite you to the upcoming FA Family Retreat, taking place at The Painted Turtle from June 21-25, 2025.

The Family Retreat offers a unique opportunity for families registered with us to participate in presentations by leading researchers and physicians specializing in Fanconi anemia (FA). Attendees will benefit from support groups aiding in coping with the disease, voluntary participation in FA research projects, and the chance to connect with other families impacted by FA.

Event Details:

  • Dates:
    June 21 – 25, 2025
  • Check-in:
    Saturday, June 21
  • Check-out:
    Wednesday, June 25

Registration is open now on the Painted Turtle website. All family applications must be completed by May 1.

Event: Meetings

Annual Family Retreat

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Institution: Laboratorio de Citogenetica, Instituto Nacional de Pediatría, Mexico City, México Area of expertise: Medical genetics, dysmorphology. My work:   I am a medical geneticist from Mexico City, introduced to the field of Fanconi anemia (FA) by my mentor, Dr. Sara Frias, whom...

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Supporting Mental Health and Wellbeing for Individuals with FA and Caregivers: Key Insights and Recommendations

At the Fanconi Cancer Foundation (FCF), we understand the critical importance of addressing mental health alongside physical health for individuals with Fanconi anemia (FA) and their family caregivers. Recent research on the mental health challenges faced by adults with FA...

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Recap of the 36th Annual Fanconi Anemia Scientific Symposium and Adult Retreat

The 36th Annual Fanconi Anemia (FA) Scientific Symposium and Adult Retreat took place in Charlotte, North Carolina in September 2024, and brought together researchers, clinicians, advocates, individuals with FA and community members from across the globe. This year’s theme, “It Takes...

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