Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Susan Mallery
Chair, Division of Oral and Maxillofacial Pathology and Radiology | DDS, PhD | Columbus, OH
Research interests include chemoprevention of oral cancer by natural products, using a continuum of experimental designs that range from cell and animal models to human clinical trials to provide mechanistic insights and determine chemopreventive efficacy, with a focus on controlled-release, local delivery methods.
FA Research Projects
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I am a poet, a writer, and a storyteller. I’m also a student, and an older brother to a young man with FA and special needs. I’m a DACA recipient. I’m here. I’m present. I am more than my current mental state, and more than this diagnosis.

People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.