Pioneering
Research
for a Brighter Tomorrow

How We Can Help

How You Can Help

A Beacon of Support

Fanconi Cancer Foundation

Our mission is to improve the lives of people affected by Fanconi anemia and associated cancers worldwide by funding exceptional research and empowering our community.

Founded in 1989 by parents Lynn and David Frohnmayer, FCF’s contributions have been instrumental in understanding the disease and improving treatments, with more than $33 million funded for 260+ research projects worldwide. Life expectancy has more than doubled as treatments have drastically improved. We must now take on the most significant and currently unsolved problem facing the FA community today: cancer.

Learn More
Site Logo

The World Leader in FA Research

Donate

Igniting Solutions

Empowering Lives through Research

Cancer may be the most difficult issue that people with FA face in their lifetimes. As the leading foundation dedicated to supporting research on this disease, we must intensify our focus on this urgent and currently unsolved problem to discover solutions.

That’s why our research activities are focused on cancer prevention, detection, treatment and awareness. Because all facets of this disease are interconnected, we also fund research into gene editing and gene therapy, preclinical models, clinical trials, improving quality of life, and understanding the disease.

Our Research

10,000+

Donors Invested

$33M+

In Research

1,500+

Families Registered

23

Genes Identified

Unleashing Progress

Creating
Lifelong Impact

Our efforts extend beyond research, encompassing advocacy, community support, educational resources, and clinical programs like the Virtual Tumor Board and the FA Patient Registry.

We envision a future in which we can prevent and/or eliminate the primary causes of death and disability in people with FA, enabling them to live full lives. We've come a long way, but we know there is still a lot of work to be done.

Our Impact

You’re Among An Amazing
Community Of People

10,000+

Donors Invested

1,500+

Families

240+

Funded Researchers

150+

Volunteers

Transparency & Accountability

Our Financials

With your help, we are improving the quality of life for people with FA around the world by funding exceptional research. FCF believes in and practices transparency, accountability, and efficiency. We are always striving to become more efficient and to ensure your generous donations are put to best use by directing as much funding as possible to grants and to supporting our community.

Governance

$1,639,245

Research Initiatives

$1,356,784

Community Support

$398,389

Fundraising

$569,462

Administration

A Network of Love

Caring for Yourself or a Loved One

Join our FA Family Network, which gives you access to educational materials, resources, support services, and community. All information and services are free, and your information is kept confidential.

Enroll as a Family

The Latest

News & Events

FCF and American Cancer Society Open 2026 Discovery Boost Grant for FA Cancer Research

We’re thrilled to announce a new partnership between the Fanconi Cancer Foundation (FCF) and the American Cancer Society (ACS): the Fanconi Cancer Foundation Discovery Boost Grant. This grant program will fuel innovative research aimed at preventing, detecting, and treating cancers associated with Fanconi anemia (FA).

Read More >

Building the Evidence for Safer Cancer Care in FA

FCF has committed $631,164 to three projects addressing critical gaps in FA cancer research. The work spans different stages, from exploring oral gene therapy and screening drugs for FA-specific safety to analyzing clinical experiences that could inform future care. These projects are building the knowledge needed to pursue safer cancer options for people with FA.

Read More >

New Mental Health and Wellbeing Toolkit Offers Practical Support for the FA Community

Living with Fanconi anemia, or caring for someone with FA, brings ongoing uncertainty, complex medical experiences and emotional strain. These experiences affect more than physical health. They can also shape mental health, relationships, daily routines and a person’s sense of safety and connection. The Fanconi Cancer Foundation is pleased to introduce the Mental Health and Wellbeing Toolkit, a new resource offering practical tools and trusted guidance for people living with FA and those who care for them.

Read More >
View All

360 E. 10th Ave., Suite 201,
Eugene, OR 97401

Back to Top ↑
Quick Links
Charity Ratings

We are proud to have a 4-star rating from Charity Navigator.

Copyright © 2018-2026 Fanconi Cancer Foundation
Content on this website is the property of the Fanconi Cancer Foundation and may only be reprinted with prior authorization. | Site Design