Who We Are

We are the #1 Fanconi Anemia (FA) Organization Worldwide

We are (FA)mily.

Mission & History

Founded in 1989, we are committed to the advancement of FA research in an unwavering pursuit for better treatments, and ultimately a cure, for FA and FA-associated cancers. We offer support, education, and resources to families facing FA to help foster hope across the globe.

The People Behind the Mission

People: Meet Our Leadership

FCF’s Board of Directors, Scientific Advisory Board, FA Adult Council, and our FCF staff may come from various backgrounds and locations spanning the globe, but all are dedicated to the advancement of FA and cancer research. Together we aim to provide ongoing support to empower and educate the FA community as a whole.

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Nearly All of Our Budget Comes From
Fundraisers & Donations

Giving Makes More Time Possible

Governance & Gifts

Donor gifts have led to the discovery of 23 genes, uncovered the connection between FA and cancer, and skyrocketed survival rates of bone marrow transplant patients. Together, we are funding exceptional research to improve the quality of life for people with FA around the world. We strive to put our community’s generous gifts to the best use possible, always.

What’s New


From research updates to words of wisdom from those living with FA, learn the many ways FCF is working to make a real impact for patients, families, and investigative researchers alike. At the Fanconi Cancer Foundation, we are in constant pursuit of identifying an answer to one day make FA a treatable, manageable disease.

Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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