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Your Story Matters

At FCF,  we believe in the power of stories to connect, inspire, and inform. Whether you or a loved one lives/lived with Fanconi anemia, your experience is an important part of our shared community. We’d love to hear about it. Use our easy-to-follow form to submit your written story or video story.

The Latest

News & Events

2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

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Tara Fought FANS with Grace and Courage; She Finished the Race

Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.

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Fanconi Cancer Foundation Expands Cancer Consortium Research with New and Continued Grants

These projects, made possible through the commitment of FCF and our funding partner, Fanconi Canada, advance collaborative research that is improving early detection, guiding cancer prevention strategies, and laying the groundwork for future treatments.

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