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At FCF, we believe in the power of stories to connect, inspire, and inform. Whether you or a loved one lives/lived with Fanconi anemia, your experience is an important part of our shared community. We’d love to hear about it. Use our easy-to-follow form to submit your written story or video story.

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The Latest

News & Events

A Part of My Life, But Not Who I Am

My name is Kambri, and I’m 17 years old. I was diagnosed with Fanconi anemia when I was five. Before my diagnosis, I just didn’t feel good for a while. I had frequent nosebleeds, bruised easily, and was tired a...

Walking Beside My Daughter Through Fanconi Anemia

What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.

Tara Fought FANS with Grace and Courage; She Finished the Race

Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.