“Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.”
Click here to read the full article about Amy Winn in Runners World magazine, out 6/12/2017.
It took me weeks to come to terms with the fact that there were no easy answers. I couldn't change the past or the diagnosis, so I focused on educating myself and becoming Tinslee's biggest advocate. We underwent all the necessary tests, scans, and procedures, and spent a year going in for lab work and check-ups.
The 2025 Scientific Symposium will be held in Minneapolis, Minnesota from September 25-27. We hope to see you there! What is the Symposium? The Scientific Symposium serves as a vital platform for the exchange of knowledge and ideas in the...
The 36th Annual Fanconi Anemia (FA) Scientific Symposium and Adult Retreat took place in Charlotte, North Carolina in September 2024, and brought together researchers, clinicians, advocates, individuals with FA and community members from across the globe. This year’s theme, “It Takes...