Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Sandra Hilliard
Finance Coordinator
Sandra brings a joyous, bubbly, and infectious presence to the FARF team. Motivated by the families FARF serves, her coworkers, and the impact the organization makes, Sandra strives to help achieve FARF’s mission with a smile and a light-hearted spirit. As Finance Coordinator, Sandra is responsible for overseeing all aspects of the organization’s bookkeeping and accounting functions. Born and raised in the countryside of Oregon, she now lives in Eugene with her partner, Scott, and her two teenagers, Carly and Ashton. On any given weekend, you could find Sandra out fishing on her boat, hanging with her kids, or cuddling with her grandbaby. Between her duties at FARF and at home, Sandra is always busy but never fails to offer a smile and a kind word to anyone she encounters.
What would be impossible for you to give up?
Spaghetti! I could eat it for every meal (and do, sometimes)!
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News & Events


By Kelly McKenna My name is Kelly McKenna, and I’m a single mom to two amazing kids. One of them is an eight-year-old boy who has Fanconi anemia (FA). Logan’s medical journey started during my pregnancy at the 20-week anatomy...

By Sarah Borden Our lives changed forever the day we learned our son Eli was diagnosed with Fanconi anemia. Just days earlier, we had celebrated his fourth birthday with family and friends, blissfully unaware of the journey ahead. When faced...