Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Rachel Altmann
Board Member
Mother of Nina
Rachel has been active in the Fanconi anemia community for several years, as an FA parent, a contributor to FARF newsletters, and a fundraiser. She has worked in the education sector for many years, as an environmental educator at Hawai’i Nature Center and most recently as Library Outreach Specialist at Multnomah County Library in Portland, Ore. Her daughter, Nina, succumbed to complications from Fanconi anemia in 2006 at age three. Rachel continues to honor Nina’s legacy by working to advance FA research and support other families who face FA.
The Latest
News & Events
At the 2025 Fanconi Cancer Foundation Scientific Symposium in Minneapolis, the Foundation presented its Lifetime Achievement Award to Dr. John E. Wagner, MD, in recognition of his decades of groundbreaking work and unwavering commitment to improving the lives of people with Fanconi anemia (FA).
Nearly 300 members of the global Fanconi anemia community gathered in Minneapolis for the 2025 Scientific Symposium and Retreat for Adults with FA, three days that blended science, lived experience, and hope.