Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Orion Marx
President
Father of Avery
A longtime resident of Sarasota County, Fla., Orion volunteers with numerous local foundations and organizations. Following years of experience in the economic sector, Orion founded Atlas Financial, a firm which helps clients with financial, estate and business owner planning. He and his wife, Lisa, have two daughters, Avery and Violet, and two rescue dogs. An avid sports fan, Orion trains for and participates in various multi-sport competitions, including running, biking, and kayaking. In 2010, he turned these sports challenges into a way to raise funds for Fanconi anemia research. “Team BrAvery” is a fundraising team named for his daughter, Avery. The team takes on extreme challenges such as running two marathons in one weekend, biking across seven states in a day, and pushing a 3,100 pound truck around a two-mile track.
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What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.
Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.