Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Michael Scott
Finance Manager
Mike grew up in San Francisco and received his bachelor’s degree in accounting from San Francisco State University. As a child, he spent his summer vacations at the family ranch in Wyoming, where he developed a love for fishing and motorcycles. After moving to Santa Cruz, Mike worked for a large nonprofit for many years while cultivating his passion for surfing and racing motorcycles. Moving to Oregon with his two dogs, Lucky and Peanut, Mike has achieved his lifelong dream of building his motorcycle track and pursuing his love of surfing and the outdoors.
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I am a poet, a writer, and a storyteller. I’m also a student, and an older brother to a young man with FA and special needs. I’m a DACA recipient. I’m here. I’m present. I am more than my current mental state, and more than this diagnosis.
People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.