Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Directory
Marie Sweeten
Family Services Director
A lifelong Oregonian, Marie loves exploring nature with either her running shoes or her camera. She has always been motivated to help others, which led her to pursue a degree in Human Development & Family Sciences from Oregon State University. With over 14 years of experience in social services, Marie brings resourcefulness and compassion to the team. At the Fund, she dedicates her time to helping FA families navigate the Fanconi anemia world in any way she can: “It’s a great feeling to be someone’s hero for a moment.” She strives to make a difference in people’s lives and also has a huge heart for animals. In her free time, she enjoys running, photography, going to the beach and spending time with friends, family, and her cat, Chloe.
What are you known for around the office?
Finding answers and resources. Also, finding the chocolate.
The Latest
News & Events
We’re thrilled to share that Rena and Paul Rice, parents of two children with Fanconi anemia—Sydney (19) and Blake (25)—have made an extraordinary commitment to the FA community: a gift of $100,000 per year for the next three years to...
If you asked me for a defining memory of our journey, it might surprise you. Some of my most cherished moments were the long hospital stays — the time I got to spend one-on-one with Hunsley, free from the distractions of the world.