Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Directory
Marie Sweeten
Family Services Director
A lifelong Oregonian, Marie loves exploring nature with either her running shoes or her camera. She has always been motivated to help others, which led her to pursue a degree in Human Development & Family Sciences from Oregon State University. With over 14 years of experience in social services, Marie brings resourcefulness and compassion to the team. At the Fund, she dedicates her time to helping FA families navigate the Fanconi anemia world in any way she can: “It’s a great feeling to be someone’s hero for a moment.” She strives to make a difference in people’s lives and also has a huge heart for animals. In her free time, she enjoys running, photography, going to the beach and spending time with friends, family, and her cat, Chloe.
What are you known for around the office?
Finding answers and resources. Also, finding the chocolate.
The Latest
News & Events
Nearly 300 members of the global Fanconi anemia community gathered in Minneapolis for the 2025 Scientific Symposium and Retreat for Adults with FA, three days that blended science, lived experience, and hope.
Research supported by the Knights has shaped best practices in prevention, early-detection, and treatment strategies for cancer, benefiting people with FA and providing far-reaching benefits for the broader population.