“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...
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Kevin McQueen
Board Member | MBA
Father of Sean
Kevin is CEO at CapTech Ventures, an IT management consulting firm based in Virginia. His son, Sean, was diagnosed with FA in 2000 at one-year-old. He and his wife, Lorraine, fundraise tirelessly for FARF, holding several events each year. They have raised over $1 million for FA research and family support services. Kevin also serves on the board of directors for the Big Brothers, Big Sisters Foundation.
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Institution: Laboratorio de Citogenetica, Instituto Nacional de Pediatría, Mexico City, México Area of expertise: Medical genetics, dysmorphology. My work: I am a medical geneticist from Mexico City, introduced to the field of Fanconi anemia (FA) by my mentor, Dr. Sara Frias, whom...
At the Fanconi Cancer Foundation (FCF), we understand the critical importance of addressing mental health alongside physical health for individuals with Fanconi anemia (FA) and their family caregivers. Recent research on the mental health challenges faced by adults with FA...