By Kelly McKenna My name is Kelly McKenna, and I’m a single mom to two amazing kids. One of them is an eight-year-old boy who has Fanconi anemia (FA). Logan’s medical journey started during my pregnancy at the 20-week anatomy...
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Kevin McQueen
Board Member | MBA
Father of Sean
Kevin is CEO at CapTech Ventures, an IT management consulting firm based in Virginia. His son, Sean, was diagnosed with FA in 2000 at one-year-old. He and his wife, Lorraine, fundraise tirelessly for FARF, holding several events each year. They have raised over $1 million for FA research and family support services. Kevin also serves on the board of directors for the Big Brothers, Big Sisters Foundation.
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By Sarah Borden Our lives changed forever the day we learned our son Eli was diagnosed with Fanconi anemia. Just days earlier, we had celebrated his fourth birthday with family and friends, blissfully unaware of the journey ahead. When faced...

“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...