Directory

Helen Potts

Event Project Manager

Born and raised in Oregon, Helen comes from a large and close-knit family. Inspired by working with children, Helen pursued a degree in Family and Human Services at the University of Oregon. Her drive to work for a cause she cares about led her to FARF. “I’m excited about the work and the environment. The team is incredibly talented and passionate. There are so many people who play a role in the FA community; I’m honored to contribute to the larger picture.” Helen brings her positive energy and can-do attitude to the team and oversees everyday operations of FARF, as well as the planning and execution of all conferences and meetings. She’s an expert organizer and natural people-person who is goal-driven. In her free time, you might find Helen trekking up a hillside, running on the trails, or curled up with a book or Netflix.

What are three words you aspire to embody?
Kindness, patience, and courage.

The Latest

News & Events

The Painted Turtle Brings Family Fun to Full Color

Since 1991, the FA Family Retreat has been a tradition that surprises, supports, and uplifts FA families worldwide. Whether families travel from within the United States or across the globe, the retreat offers connection, educational sessions, resources, expert consultations, and...

Read More >

Katherine De Los Santos Receives the 2024 Winn/Byrd Award for Adults with FA

Katherine (middle) with 2023's recipient Ana Tabar (left) and FCF CEO Isis Sroka (right) The De Los Santos family first experienced the complexities of Fanconi anemia as they endured the devastating loss of their daughter, Gracie, who passed away from...

Read More >

From Shock to Strength: Our FA Diagnosis

It took me weeks to come to terms with the fact that there were no easy answers. I couldn't change the past or the diagnosis, so I focused on educating myself and becoming Tinslee's biggest advocate. We underwent all the necessary tests, scans, and procedures, and spent a year going in for lab work and check-ups.

Read More >
Join us this September to Endure for a Cure! Run, walk, ride for FA research!
This is default text for notification bar