Directory

Helen Potts

Event Project Manager

Born and raised in Oregon, Helen comes from a large and close-knit family. Inspired by working with children, Helen pursued a degree in Family and Human Services at the University of Oregon. Her drive to work for a cause she cares about led her to FARF. “I’m excited about the work and the environment. The team is incredibly talented and passionate. There are so many people who play a role in the FA community; I’m honored to contribute to the larger picture.” Helen brings her positive energy and can-do attitude to the team and oversees everyday operations of FARF, as well as the planning and execution of all conferences and meetings. She’s an expert organizer and natural people-person who is goal-driven. In her free time, you might find Helen trekking up a hillside, running on the trails, or curled up with a book or Netflix.

What are three words you aspire to embody?
Kindness, patience, and courage.

The Latest

News & Events

2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

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Hope for Hunsley: Carrying My Daughter’s Legacy Forward

If you asked me for a defining memory of our journey, it might surprise you. Some of my most cherished moments were the long hospital stays — the time I got to spend one-on-one with Hunsley, free from the distractions of the world.

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Trailblazing a Path: Meet Actor, Advocate, and Creator Cale Ferrin

At just 18 years old, Cale Ferrin has already built a career as an actor, advocate, and creator. With appearances across TV, film, music videos, and ad campaigns, Cale’s passion for storytelling shines through each project he approaches. His work...

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