Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Helen Potts
Event Project Manager
Born and raised in Oregon, Helen comes from a large and close-knit family. Inspired by working with children, Helen pursued a degree in Family and Human Services at the University of Oregon. Her drive to work for a cause she cares about led her to FARF. “I’m excited about the work and the environment. The team is incredibly talented and passionate. There are so many people who play a role in the FA community; I’m honored to contribute to the larger picture.” Helen brings her positive energy and can-do attitude to the team and oversees everyday operations of FARF, as well as the planning and execution of all conferences and meetings. She’s an expert organizer and natural people-person who is goal-driven. In her free time, you might find Helen trekking up a hillside, running on the trails, or curled up with a book or Netflix.
What are three words you aspire to embody?
Kindness, patience, and courage.
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News & Events
What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.
Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.