My lab’s vision for the next five years is to apply what we have learned to develop molecules that can alter FA protein behavior. These could be used to treat cancer or alter gene editing outcomes.
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Egil Dennerline
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Egil Dennerline is a 49-year-old Danish-American poet and singer/songwriter who lives with FA. Since his first cancer in 2011 (he has been diagnosed 11 times, as of 2023), Egil has been invited to share his FA story through various media channels. He speaks about turning perceived weaknesses into strengths and how having a life-threatening illness can (ironically) foster an overwhelming love and appreciation of life. He has published four poetry collections and made five studio albums; most recently the follow-up album “Respite,” with his newest band, Wall to Wall. Egil also works as a freelance film producer (FA permitting) and most recently produced his second feature film. He lives in Denmark with his wife and daughter. He recently received a bone marrow transplant and is focused on recovery.
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In a world where every day presents new challenges, my 11-year-old son, Omar, from Oman, stands out for his resilience and eagerness to raise awareness about Fanconi anemia. Diagnosed at just five years old, we truly believe his journey is a testament to hope and the strength of the human spirit.
That's why we're thrilled to announce the launch of the Fanconi Cancer Foundation-AACR NextGen Grant for Transformative Cancer Research, a flagship funding opportunity in partnership with the American Association for Cancer Research (AACR).