My name is Kambri, and I’m 17 years old. I was diagnosed with Fanconi anemia when I was five. Before my diagnosis, I just didn’t feel good for a while. I had frequent nosebleeds, bruised easily, and was tired a...
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Duncan Nunes
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Duncan is a 23-year-old scientist who lives in Boston, Mass. He is currently working as a scientist at Novartis Institute for Medical Research. He previously worked in the FA research lab of Dr. Niall Howlett at the University of Rhode Island. In addition to his interest in science, Duncan has also proven himself an effective fundraiser for FARF.
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What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.
Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.