“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...
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Brian Horrigan
Board Member | MA/ABD
Father of Delia
Brian Horrigan is Exhibits Curator at the Minnesota Historical Society, where he is responsible for major exhibits at the Minnesota History Center and historic sites around the state. His daughter, Delia Levine-Horrigan, was born in 1987 and diagnosed with FA at age 11. Since Delia’s diagnosis, Brian and his family has been actively involved in the FA family community. Since 2000, his family has fundraised for the Fund consistently and inspired other families to do the same.
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Institution: Laboratorio de Citogenetica, Instituto Nacional de Pediatría, Mexico City, México Area of expertise: Medical genetics, dysmorphology. My work: I am a medical geneticist from Mexico City, introduced to the field of Fanconi anemia (FA) by my mentor, Dr. Sara Frias, whom...
At the Fanconi Cancer Foundation (FCF), we understand the critical importance of addressing mental health alongside physical health for individuals with Fanconi anemia (FA) and their family caregivers. Recent research on the mental health challenges faced by adults with FA...