Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Brian Horrigan
Board Member | MA/ABD
Father of Delia
Brian Horrigan is Exhibits Curator at the Minnesota Historical Society, where he is responsible for major exhibits at the Minnesota History Center and historic sites around the state. His daughter, Delia Levine-Horrigan, was born in 1987 and diagnosed with FA at age 11. Since Delia’s diagnosis, Brian and his family has been actively involved in the FA family community. Since 2000, his family has fundraised for the Fund consistently and inspired other families to do the same.
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Israel endured so much in his short life. But even in the hardest moments, he brought so much light. One of my favorite memories from his transplant journey was how he never went by his real name. The first doctor we saw when he was admitted asked him his name, and Israel replied, “Batman.” From then on, he cycled through names from his favorite movies: Randall, Pascal, and eventually Lewis.
April 15, 1983 – December 27, 2017By Daisy & Marzban Ardeshir The story below was shared by Imroze’s parents, Daisy and Marzban Ardeshir, in remembrance of their daughter’s strength, grace, and enduring spirit. Our second child, Imroze, was diagnosed with...