Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Abigail Havens
Development Coordinator
Though originally from Oregon, Abigail traveled all over the country after completing her bachelor’s degree in Interdisciplinary Studies. She lived in South Korea, where she taught English as a second language. This sparked an interest in linguistics, leading her to get a master’s degree in the subject from the University of Oregon. Abigail manages donor relations at the Fund, including the upkeep of the donor database and the issuing of tax receipts.
“Our donors make the mission of the Fund possible. We’re so grateful for their contributions, which really do make a difference. I’m happy to play a role in the work the Fund accomplishes.”
Around the office, Abi is known for her impeccable sense of style and quiet, biting wit. She’s also an avid reader and salsa dancing aficionado.
What are three things you have no patience for?
Circular logic, pettiness, and hard-to-peel oranges.
The Latest
News & Events


April 15, 1983 – December 27, 2017By Daisy & Marzban Ardeshir The story below was shared by Imroze’s parents, Daisy and Marzban Ardeshir, in remembrance of their daughter’s strength, grace, and enduring spirit. Our second child, Imroze, was diagnosed with...

We’re thrilled to share that Rena and Paul Rice, parents of two children with Fanconi anemia—Sydney (19) and Blake (25)—have made an extraordinary commitment to the FA community: a gift of $100,000 per year for the next three years to...