Facing the impact of FA can be overwhelming. FCF values offering opportunities for a safe place to talk along with practical support for individuals with FA, direct family and care partners, and those who have lost someone to FA.

With our partners, Allison Breininger and Lori Krause, FCF is pleased to offer a limited number of one-on-one coaching scholarships to individuals for whom cost is prohibitive.  Applicants must be 16+ and English speaking.

Read more about the coaches below and apply for a coaching scholarship here.

If you are interested in coaching, but do not wish to participate in the scholarship program, feel free to reach out to our Community Support team (communitysupport@fanconi.org) and we will connect you to a coach!

Lori Krause

Lori Krause is an experienced, professionally certified life coach focusing on grief and loss. She creates safe spaces for people to process their emotions with understanding and without judgment, helping them to find a path forward that aligns with their specific needs and beliefs. Lori is also a professional doula for those facing death, helping them to leave this world on their own terms. She provides an empathetic, objective sounding board for the client to make end-of-life decisions, helping to facilitate their choices and often working with the family to help ensure the client’s needs are understood and met. Focusing on communication and inclusion, she also gives a voice to family and friends supporting the process. Unsurprisingly, Lori’s professional journey began with an intense grief period of her own. She experienced the death of her first husband, her father, and several close friends in the span of five years. Lori has extensive experience in facilitating workshops and support groups for several nonprofit organizations both virtual and in person.

Through one-on-one and group coaching, Lori walks alongside her clients, holding hands in support as they process life’s deep emotions and providing education on what may be expected on their journey forward. She assists in developing individualized coping practices and discovering new perspectives for the caregivers and family of loved ones living life with Fanconi anemia (FA). Lori offers hour long coaching sessions for individuals with FA, family members, care partners, and bereaved individuals.

Allison Breininger

Allison Breininger has a MA in Education and spent twenty years teaching, training, directing, coaching, and creating content in the realm of education. At 31, she became a caregiver for her husband, Sean, when he was diagnosed with the rare genetic disease, Fanconi anemia.

In the thirteen years since, Allison has been by Sean’s side through a bone marrow transplant and cancer of the tongue, throat, gums, bladder, esophagus, and skin. In those years, she has experienced firsthand that caregivers are in the negative space: vital yet overlooked and unsupported. Fueled by what she has seen, Allison founded the non-profit, The Negative Space, as a way to use her experience and skills to change the way caregivers are seen and supported.

The Negative Space offers 1:1 virtual coaching. These hour-long sessions provide caregivers with a space for venting, processing, and problem solving with a listener who gets it and won’t bright side or judge.