Living with Fanconi anemia brings emotional, social, and psychological challenges – not just physical ones. At FCF, we aim to support the mental well-being of the FA community through research, professional services, peer support, and trusted resources. Explore the sections below to find help, connection, and understanding.
Research by Dr. Kathleen Bogart and Megan Voss explores the psychological and social impacts of FA. Their work seeks to uncover ways to enhance mental health support and care for people affected by FA.
FCF partners with Give An Hour, a nonprofit that connects individuals and families with mental health professionals. This free and confidential service provides support for the FA community.
We offer one-on-one coaching scholarships for individuals age 16 and up, including those navigating grief or caregiving roles, through experienced coaches Lori Krause and Allison Breininger. These sessions create safe, judgment-free space to process emotions and find coping tools with someone who understands.
Browse our resource library for tools, guides, and videos focused on mental health, emotional resilience, and psychosocial support.
