It is with full hearts and deep sadness that we remember our dear friend, long-time supporter, and former board member, Sharon Schuman, who passed away on April 23, 2025, following a tragic accident near her home in Eugene, Oregon.

Her connection to our organization began decades ago, when she taught violin to Amy Frohnmayer, the daughter of FCF’s founders, Lynn and Dave Frohnmayer. That personal bond grew into a lifelong dedication to our mission and community. 

Sharon was more than a dedicated volunteer; she was a driving force in the Fanconi Cancer Foundation community. Over 25 years, she raised more than $500,000 through benefit concerts, bike rides and runs, and personal outreach. Her efforts helped advance research, fund innovative science, and support families living with Fanconi anemia. She was relentless in her commitment, and joyful in it, too.

But what we’ll remember most is not just what Sharon did, but who she was.

A gifted writer, athlete, violinist, and thinker, Sharon brought energy and insight into every conversation, gathering, and event. At our Scientific Symposium, she was always in the front row listening intently and asking thoughtful questions. She believed in the power of research and was endlessly curious and fully engaged.

Sharon also helped shape the way we talk about Fanconi anemia. Her article, No Longer an Orphan, explores the history and scientific implications of FA research with clarity, urgency, and hope. It remains one of our most widely shared and impactful pieces, and reflects her gift for bridging complex ideas and human experience.

She was a connector—between people, ideas, and disciplines. And she was deeply invested in the FA community. Whether writing for our newsletter, welcoming a new family, or reaching out after someone’s loss, Sharon showed up with compassion, intellect, and a fierce belief in our shared mission.

We will miss Sharon’s voice, laughter, drive, and generous spirit. Her legacy lives on in the lives she touched, the research she helped fund, and the community she fostered. Her commitment to uplifting others also extended far beyond FCF. She championed many causes close to her heart and used her voice and musical talent to support a wide range of nonprofit work.

Sharon embodied the very best of who we strive to be: curious, committed, and full of heart.