The acronym for a group of birth anomalies that are not necessarily related to each other but tend to occur together. These include Vertebral defects, Anorectal malformations, Cardiac abnormalities, Tracheo-Esophageal abnormalities, Renal defects, and Limb defects, such as extra fingers or toes, or abnormally formed forearms.
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Since 1991, the FA Family Retreat has been a tradition that surprises, supports, and uplifts FA families worldwide. Whether families travel from within the United States or across the globe, the retreat offers connection, educational sessions, resources, expert consultations, and...
April 15, 1983 – December 27, 2017By Daisy & Marzban Ardeshir The story below was shared by Imroze’s parents, Daisy and Marzban Ardeshir, in remembrance of their daughter’s strength, grace, and enduring spirit. Our second child, Imroze, was diagnosed with...
People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.