People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.

At just 18 years old, Cale Ferrin has already built a career as an actor, advocate, and creator. With appearances across TV, film, music videos, and ad campaigns, Cale’s passion for storytelling shines through each project he approaches. His work...