Disease in which malignant cells form in the tissues of the hypopharynx.
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People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.
By Kelly McKenna My name is Kelly McKenna, and I’m a single mom to two amazing kids. One of them is an eight-year-old boy who has Fanconi anemia (FA). Logan’s medical journey started during my pregnancy at the 20-week anatomy...
The 36th Annual Fanconi Anemia (FA) Scientific Symposium and Adult Retreat took place in Charlotte, North Carolina in September 2024, and brought together researchers, clinicians, advocates, individuals with FA and community members from across the globe. This year’s theme, “It Takes...