Hearing assistive technology. Technology systems and/or devices (frequently digital or wireless) that help people with hearing, voice, speech, or language disorders to communicate more effectively in their daily lives.
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This virtual meeting is an opportunity for individuals diagnosed with Fanconi Anemia Neurological Syndrome (FANS) and their families to gather, find mutual support for navigating FANS, and hear from leading FANS physician and researcher, Dr. Stella Davies. Dr. Davies is...
The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate...
People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.