Events

Retreat for Adults with FA

Sep 25th, 2025, 03:00 PM - Sep 28th, 2025, 12:00 PM

The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate in voluntary research studies. We are excited to continue providing education and support sessions for caregivers.

This retreat is held in conjunction with our annual Scientific Symposium. Attendees from both meetings share meals together, including the annual banquet dinner. Adult Retreat attendees are welcome to attend Symposium sessions as well.

Event: Meetings

Retreat for Adults with FA

The Latest

News & Events

2025 Research Updates

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In Loving Memory of Imroze Marzban Ardeshir

April 15, 1983 – December 27, 2017By Daisy & Marzban Ardeshir The story below was shared by Imroze’s parents, Daisy and Marzban Ardeshir, in remembrance of their daughter’s strength, grace, and enduring spirit. Our second child, Imroze, was diagnosed with...

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A Remarkable Gift for the FA Community

We’re thrilled to share that Rena and Paul Rice, parents of two children with Fanconi anemia—Sydney (19) and Blake (25)—have made an extraordinary commitment to the FA community: a gift of $100,000 per year for the next three years to...

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