Events

Annual Family Retreat

Aug 1st, 2024, 12:00 AM - Aug 5th, 2024, 12:00 AM

We are delighted to invite you to the upcoming FA Family Retreat, taking place at The Painted Turtle from August 1-5, 2024.

The Family Retreat offers a unique opportunity for families registered with us to participate in presentations by leading researchers and physicians specializing in Fanconi anemia (FA). Attendees will benefit from support groups aiding in coping with the disease, voluntary participation in FA research projects, and the chance to connect with other families impacted by FA.

Event Details:

  • Dates:
    August 1 – August 5, 2024
  • Check-in:
    Thursday, August 1, at 4:30 pm
  • Check-out:
    Monday, August 5, at 12:00 pm

Event: Meetings

Annual Family Retreat

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Supporting Mental Health and Wellbeing for Individuals with FA and Caregivers: Key Insights and Recommendations

At the Fanconi Cancer Foundation (FCF), we understand the critical importance of addressing mental health alongside physical health for individuals with Fanconi anemia (FA) and their family caregivers. Recent research on the mental health challenges faced by adults with FA...

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Recap of the 36th Annual Fanconi Anemia Scientific Symposium and Adult Retreat

The 36th Annual Fanconi Anemia (FA) Scientific Symposium and Adult Retreat took place in Charlotte, North Carolina in September 2024, and brought together researchers, clinicians, advocates, individuals with FA and community members from across the globe. This year’s theme, “It Takes...

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FA Adult Retreat & Scientific Symposium: A Homecoming for Patients, Families and Researchers

Hello, this is FA Adult Council member Lexi Marshall with a recap of the FA Adult Retreat in Charlotte, North Carolina. To back up, I attended my first FA Adult Retreat and Scientific Symposium as a newly diagnosed person with...

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