By Sarah Borden Our lives changed forever the day we learned our son Eli was diagnosed with Fanconi anemia. Just days earlier, we had celebrated his fourth birthday with family and friends, blissfully unaware of the journey ahead. When faced...
Events
Annual Family Retreat
We are delighted to invite you to the upcoming FA Family Retreat, taking place at The Painted Turtle from June 21-25, 2025.
The Family Retreat offers a unique opportunity for families registered with us to participate in presentations by leading researchers and physicians specializing in Fanconi anemia (FA). Attendees will benefit from support groups aiding in coping with the disease, voluntary participation in FA research projects, and the chance to connect with other families impacted by FA.
Event Details:
- Dates:
June 21 – 25, 2025 - Check-in:
Saturday, June 21 - Check-out:
Wednesday, June 25
Registration is open now on the Painted Turtle website. All family applications must be completed by May 1.
Event: Meetings
Annual Family Retreat
The Latest
News & Events
“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...
Institution: Laboratorio de Citogenetica, Instituto Nacional de Pediatría, Mexico City, México Area of expertise: Medical genetics, dysmorphology. My work: I am a medical geneticist from Mexico City, introduced to the field of Fanconi anemia (FA) by my mentor, Dr. Sara Frias, whom...