The Coley’s Cause Memorial Golf Tournament, founded by the Levine family in 2005, is an annual tribute to their daughter and sister Nicole “Coley” Levine, who passed away from FA complications at the age of six.

“If there was ever a child who possessed the spirit and toughness to endure the perils that this disease imposes, it was Nicole,” say her parents, Tood and Kristin Levine. “Anyone who had the pleasure of knowing her instantly saw her as a feisty child who despite her small stature, always insisted on doing things her way and to never be left behind.” 

What started as a small local fundraiser in memory of an incredible little girl has evolved into a powerful movement uniting friends, family, neighbors, and supporters in pursuit of a future with better outcomes and brighter hope for families affected by FA.

“We never imagined our tournament would be selling out for 21 years. The commitment and passion of our golfers, sponsors and volunteers have for making an impact on FA in Nicole’s memory is astounding. The vibe that surrounds Coley’s Cause is unique and palpable.” – Todd and Nicole.

2025: A Record-Setting Year

The 2025 event marked a milestone, not only in longevity but in impact. This year’s tournament raised a record-setting $39,000 for FCF, pushing the 21-year total to more than $547,000 in FA research funding! Additional contributions this year included $1,500 toward the Nicole Levine Memorial Scholarship and $2,000 to support local families facing medical challenges. Together, the event’s lifetime giving total now exceeds an incredible $633,000!

These numbers tell a story of generosity, but they also speak to something deeper: a community that shows up year after year in support and love for Coley, whose spirit continues to inspire meaningful change. For every event, the Levine family invites families impacted by FA, healthcare professionals that had an impact on Coley’s FA journey, and even FCF staff to speak to the progress being made and the impact this event has on the bright future we all strive for. 

A Community with Heart

This year’s tournament was filled with warmth, laughter, and reflection. As always, guests showed up dressed in orange for a vibrant tribute to Coley and her favorite color. The heart of the day, however, came from a powerful speech delivered by Amanda Barber, an FA parent, who stood alongside her daughter Emma and shared a message of perseverance, gratitude, and hope. As one attendee put it, “dry eyes were hard to come by.”

Moments like these are what make Coley’s Cause more than a fundraiser. Rather, it can be best described as an experience; where golf is simply a sideshow, taking a back seat to a time where friends reconnect, stories are shared, lives are honored, and a vision for the future takes shape.

A Lasting Legacy

Thanks to the Levine family and the Coley’s Cause community, FCF has been able to invest in critical research aimed at improving treatments and expanding life expectancy for those with FA and associated cancers. These funds have supported initiatives focused on cancer prevention, gene therapy, and quality-of-life improvements which directly impact the lives of families facing this disease.

With Gratitude

FCF remains deeply grateful for the Levine family’s tireless dedication. Not only do the Levine family and their community raise funds for FA research each year, but they are also deeply dedicated to staying up to date with progress in the field and have passed this passion to their incredible supporters. Their commitment has not only raised awareness but has also catalyzed meaningful progress to create opportunities for discovery, hope, and healing.

To every sponsor, golfer, volunteer, and donor who made this event a success: thank you. You are part of a legacy that continues to shape the future for individuals with FA. And to the Levine family—Todd, Kristin, Marissa, Travis, and Nicolas—thank you for turning grief into purpose and for leading with such compassion and determination. Your dedication truly changes lives!

For additional information about Nicole, her journey with FA, and the Coley’s Cause Memorial Golf Tournament, please visit: www.coleyscause.com