Supported Research

Building the FRIENDS Shared Data Resource

Research Grant | 2026 | Chicago, USA with participating consortium institutions

Amount Funded: $330,000

FRIENDS brings together 19 institutions to create a shared resource for FA research. This award supports organizing clinical information consistently across institutions and piloting contributions of electronic health records from individuals. The resource will help researchers study cancer, transplant effects, fertility and other aspects of FA care.

Researchers: Sam Volchenboum

Building the FRIENDS Shared Data Resource