The Family Retreat offers families a break from appointments, treatment decisions and everyday responsibilities. Children can try new activities and grow in confidence while caregivers learn, share practical support and connect with one another. The relationships formed at camp often continue long after everyone goes home.
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Cecilia Córdoba
Cecilia Córdoba is the founder of GAAF (Argentine Fanconi Anemia Group) and a member of ALAPA (Argentine Patient Alliance). She is the mother and caregiver of the late Agustina Kaucic; she founded GAAF so that no family in Argentina would feel alone when facing the diagnosis. Since then, she has supported patients and families, disseminated reliable information, and worked to ensure access to diagnosis and treatment. GAAF is part of ALAPA, through which they jointly promote a support network and advocate for the rights of those living with rare diseases.
Cecilia Córdoba
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By Cecilia Córdoba, mother of Agustina Milagros Kaucic When my daughter Agustina was 2 and a half years old, our lives changed forever. It was very difficult to reach a diagnosis. And when we finally received it, it was devastating....
The children and adults with FA are why we’re all here. They are the reason for the countless hours spent in the lab, the energy poured into fundraisers, the conversations we have with anyone willing to listen, and the reason...