What We Do

We Improve Lives Through Research, Advocacy, Education, and Support.

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We are the world leaders pioneering the advancement of FA research in pursuit of better treatments, and ultimately a cure, for FA and FA-associated cancers. 

Research is the key to one day making FA a manageable condition. We’ve come a long way and individuals with FA are living longer. But our mission is not complete. Through research, advocacy, support and education,  we continue to take major steps forward in addressing our biggest problem yet: cancer.

The Path Starts Here

Research

Research is the first step towards finding better treatments, and ultimately a cure, for FA and its associated cancers. By investing in research and people, the Fanconi Cancer Foundation fosters the innovation necessary to enhance clinical care. We are committed to preventing, detecting, and treating cancer in individuals with FA, recognizing that understanding FA-associated cancers can inform cancer treatment beyond our immediate community.

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Centering the FA Experience

Advocacy

We amplify the voices of people living with FA and their families to shape research, improve clinical care, and raise awareness of FA and associated cancers. Through our advocacy program, trained community advocates share lived experience with researchers, clinicians and policymakers to ensure community priorities are centered in research and care decisions.

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We’re Here For You

Support & Education

If you or someone you love is facing a FA diagnosis, you are not alone. FA is a complex diagnosis, one that can affect all areas of the body and life. We provide individuals and their families, along with their medical care teams, with education, connection, and resources to help them navigate and cope with an FA diagnosis.

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Our organization thrives primarily on the generous support of fundraisers and donations

Science & Hope For A Cure

Fundraising

Fundraising is the bridge between science and hope for anyone facing FA. Through donor support, the Fanconi Cancer Foundation gives researchers the necessary resources to make groundbreaking discoveries, develop innovative therapies, and pioneer life-altering studies to help transform the lives of those impacted by FA and cancer as a whole.

Fundraising

Our FAmily Spans the Globe

Events

From galas to marathons, the FA community comes together during events throughout the year all over the world. Whether raising funds in support of our mission to find effective treatments and a cure for FA, bringing the experts together, or gathering FA families together for unwavering support, find out what’s next on our FA events calendar.

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The Latest

News & Events

FCF and American Cancer Society Open 2026 Discovery Boost Grant for FA Cancer Research

We’re thrilled to announce a new partnership between the Fanconi Cancer Foundation (FCF) and the American Cancer Society (ACS): the Fanconi Cancer Foundation Discovery Boost Grant. This grant program will fuel innovative research aimed at preventing, detecting, and treating cancers associated with Fanconi anemia (FA).

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Building the Evidence for Safer Cancer Care in FA

FCF has committed $631,164 to three projects addressing critical gaps in FA cancer research. The work spans different stages, from exploring oral gene therapy and screening drugs for FA-specific safety to analyzing clinical experiences that could inform future care. These projects are building the knowledge needed to pursue safer cancer options for people with FA.

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New Mental Health and Wellbeing Toolkit Offers Practical Support for the FA Community

Living with Fanconi anemia, or caring for someone with FA, brings ongoing uncertainty, complex medical experiences and emotional strain. These experiences affect more than physical health. They can also shape mental health, relationships, daily routines and a person’s sense of safety and connection. The Fanconi Cancer Foundation is pleased to introduce the Mental Health and Wellbeing Toolkit, a new resource offering practical tools and trusted guidance for people living with FA and those who care for them.

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We are proud to have a 4-star rating from Charity Navigator.

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