What We Do

We Improve Lives Through Research, Advocacy, Education, and Support.

The Path Starts Here

Research

Research is the first step towards finding better treatments, and ultimately a cure, for FA and its associated cancers. By investing in research and people, the Fanconi Cancer Foundation fosters the innovation necessary to enhance clinical care. We are committed to preventing, detecting, and treating cancer in individuals with FA, recognizing that understanding FA-associated cancers can inform cancer treatment beyond our immediate community.

Centering the FA Experience

Advocacy

We amplify the voices of people living with FA and their families to shape research, improve clinical care, and raise awareness of FA and associated cancers. Through our advocacy program, trained community advocates share lived experience with researchers, clinicians and policymakers to ensure community priorities are centered in research and care decisions.

We’re Here For You

Support & Education

If you or someone you love is facing a FA diagnosis, you are not alone. FA is a complex diagnosis, one that can affect all areas of the body and life. We provide individuals and their families, along with their medical care teams, with education, connection, and resources to help them navigate and cope with an FA diagnosis.

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Our organization thrives primarily on the generous support of fundraisers and donations

Science & Hope For A Cure

Fundraising

Fundraising is the bridge between science and hope for anyone facing FA. Through donor support, the Fanconi Cancer Foundation gives researchers the necessary resources to make groundbreaking discoveries, develop innovative therapies, and pioneer life-altering studies to help transform the lives of those impacted by FA and cancer as a whole.

Our FAmily Spans the Globe

Events

From galas to marathons, the FA community comes together during events throughout the year all over the world. Whether raising funds in support of our mission to find effective treatments and a cure for FA, bringing the experts together, or gathering FA families together for unwavering support, find out what’s next on our FA events calendar.

Researchers standing together

The Latest

News & Events

A Place to Connect, Grow and Belong

The Family Retreat offers families a break from appointments, treatment decisions and everyday responsibilities. Children can try new activities and grow in confidence while caregivers learn, share practical support and connect with one another. The relationships formed at camp often continue long after everyone goes home.

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Why We Need a Real Cure 

By Cecilia Córdoba, mother of Agustina Milagros Kaucic When my daughter Agustina was 2 and a half years old, our lives changed forever. It was very difficult to reach a diagnosis. And when we finally received it, it was devastating....

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The FA Memorial Wall: A Space to Remember

The children and adults with FA are why we’re all here. They are the reason for the countless hours spent in the lab, the energy poured into fundraisers, the conversations we have with anyone willing to listen, and the reason...

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