Kelly McKenna, a single mom from Ohio, is the sole caregiver for her son, who was diagnosed with FA in 2021. Driven by her persistent advocacy for her son’s diagnosis, Kelly emphasizes the importance of parents advocating for their children. She aims to increase awareness about FA among the general public, provide physicians and scientists with the caregiver’s perspective, and engage more deeply with the FA community. Kelly’s dedication to sharing her story and raising awareness motivated her to become an FA Advocate.