Sylvia Sanyanga is a public relations professional and the Founding Trustee of The Nate Foundation, established in honor of her two children with FA. With a Master’s degree in Hospitality and Tourism, Sylvia has successfully organized fundraisers and created inclusive educational environments for FA patients. She is dedicated to making a meaningful impact in the FA community and has received numerous awards for her advocacy work. Sylvia resigned from her full-time job in 2023 to fully devote herself to serving the FA community, planning fundraisers, and supporting families in need.