We’re thrilled to announce a new partnership between the Fanconi Cancer Foundation (FCF) and the American Cancer Society (ACS): the Fanconi Cancer Foundation Discovery Boost Grant. This grant program will fuel innovative research aimed at preventing, detecting, and treating cancers associated with Fanconi anemia (FA).
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Orion Marx
President
Father of Avery
A longtime resident of Sarasota County, Fla., Orion volunteers with numerous local foundations and organizations. Following years of experience in the economic sector, Orion founded Atlas Financial, a firm which helps clients with financial, estate and business owner planning. He and his wife, Lisa, have two daughters, Avery and Violet, and two rescue dogs. An avid sports fan, Orion trains for and participates in various multi-sport competitions, including running, biking, and kayaking. In 2010, he turned these sports challenges into a way to raise funds for Fanconi anemia research. “Team BrAvery” is a fundraising team named for his daughter, Avery. The team takes on extreme challenges such as running two marathons in one weekend, biking across seven states in a day, and pushing a 3,100 pound truck around a two-mile track.
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FCF has committed $631,164 to three projects addressing critical gaps in FA cancer research. The work spans different stages, from exploring oral gene therapy and screening drugs for FA-specific safety to analyzing clinical experiences that could inform future care. These projects are building the knowledge needed to pursue safer cancer options for people with FA.
Living with Fanconi anemia, or caring for someone with FA, brings ongoing uncertainty, complex medical experiences and emotional strain. These experiences affect more than physical health. They can also shape mental health, relationships, daily routines and a person’s sense of safety and connection. The Fanconi Cancer Foundation is pleased to introduce the Mental Health and Wellbeing Toolkit, a new resource offering practical tools and trusted guidance for people living with FA and those who care for them.